a jumble of an update.

i’ve been thinking about how to write this post for 6 weeks and i’m still totally unsure on how to say what i want to say. this post will not rank very highly in the eloquence category, so consider yourselves warned. also, if words like “uterus” make you feel squeamish, go ahead and click over to the next blog post in your reader.

i’ll start with a little background fact: the Perrys do not have fun 20-week sonograms. at Owen’s, our emotions took a plummet as we went immediately from the thrilling moment of having his gender written down for us, to hearing that my uterus had grown an amniotic band that could cause disfigurement should Owen interact with it, and that Owen had spots on his heart and brain. i’ll never forget how i felt in that room, like the blood was draining out of me, like i couldn’t protect a being though it be fully enclosed by my own body. we had monthly sonograms after that, each showing that Owen seemed to be doing well, but toward the end my ability to sustain him was dwindling. fluid levels lowering, placenta calcifying, movement lessening, he had to be removed from me 3 weeks early by emergency c-section. by God’s grace, the heart and brain spots proved to be nothing, and he never interfered with the band, which turned out to be attached to a uterine septum, a “heart-shaped uterus,” a division.

a touch over two years later, we giddily walked into the sonogram for baby #2. once again, we asked that the gender be written down for us to open later, and we were thrilled when it was easily deduced. and then came the plummet,

“Well, almost everything looks good, but this baby has club feet. They could have been caused by him kicking against your uterine septum.”

in case any of you are under the false impression that my initial reaction to everything is “well Praise the Lord,” i’ll just inform you that my thoughts in the moment after the doctor spoke were well outside the range of blog post appropriate.

the doctor went on to explain that he didn’t see any other issues at this point, that the feet were likely an isolated incident, as most cases of clubfoot are. clubfoot is a birth defect that occurs in 1 in 1000 births, 40% of which show the defect in both feet. clubfoot can also be a sign of spina bifida or cerebral palsy. no reason to think the baby has either of those conditions at this point, the doctor told us, let’s do a follow up in six weeks.

let’s go to Antigua and never come back, I thought.

in the weeks since that appointment, we have traveled to Antigua (that will get a “Praise the Lord” from me), hosted the first fosters, and had a follow-up sonogram. i have questioned why we have experienced such a string of strange, not life-threatening but not minor health issues, and why my body seems intent on causing the lives within it to struggle. the follow-up sonogram was consistent with the first, showing clubfoot present in both feet but no markers of a larger issue. my thoughts are still working themselves out.

i am a mix of thankful, frustrated, incredulous, fierce, annoyed, exhausted and ready. in other words, i’m a mother. i’m struggling, i’m processing. i’m learning and preparing; that’s what mothers do.

from what we have gathered, Gabriel will need to see a Pediatric Orthopedist within the first week or two after his birth. at that appointment, he will have his legs stretched and casted, and we will return for new casts every week for several weeks. once casting is completed, he will be fitted for boots with braces and a bar that goes between his feet, most likely to be worn 23 hours a day for a few months, then fewer and fewer hours until he wears it just at nighttime, probably until around age 4. the treatment is extremely effective and, while he will probably walk later than most children, he is likely to gain full usage of his legs and feet over time. for that, we are very thankful.

while we are extremely grateful at the thought of the outcome, we are also recognizing that the process is no small thing. all the “baby stuff” that can come with it’s own set of joys and frustrations, trial and error, like nursing, bathing, babywearing, clothing and playing, has to be thought through a little differently this time around. nursery workers and babysitters will need extra information. sleep scheduling will have to take a backseat to weekly trips to Houston for casting and extra soothing on uncomfortable days. blankets and pillows will be constant companions for supporting awkward limbs. it’s not unmanageable, it’s not nearly as hard as it could be, and it’s also not nothing. i can be so quick to downplay my hardships in comparison to those of others, and i don’t necessarily plan on trading in that quality anytime soon. but this time around, i’m at least letting other people know what’s going on. i’m at least saying that i have completely bought into the “it takes a village” philosophy for raising children, and if someone wants to help, i’ll be saying yes.

we would love prayers for finding the right doctor, Owen’s adjustment to a new baby who will require extra attention, wise financial planning as we prepare for a new onslaught of medical bills and my mental and emotional stability as we prepare to climb a new mountain.

one thing is for sure, our lives are never boring. they never fail to give opportunity to let our true colors show, to ask us if we will choose Christ and joy or self-pity and apathy. i’m praying that by choosing to struggle through my feelings and prepare for this baby with all the foresight and tenacity i can, that i’m choosing Christ. He’s never asked me to shut down those screams inside that say but this isn’t right, to ignore the mothering instinct that is sickened by the thought of her child in pain. i’m hacking away at the lies and accusations that attempt to keep me from taking those appeals to Him. i’m reminding myself that the desire for wholeness, the desire for health and peace and good and right comes from Him. He is the only One who can show me how to live in this in between, in this world where I know of His always goodness yet live inside the nowhere near perfect.

a friend once gave me a Bible with Proverbs 3:26 underlined in it. “The Lord will be your confidence, and will keep your foot from being caught.” i never thought that verse would have such a literal meaning to me. it’s become my verse to pray for Gabriel and myself together. Gabriel, whose name means “The Lord is my Strength.”

strength and confidence. uncaught feet. let’s add those to the prayer list, too.

Author: Abby Perry

Abby Perry is an old soul, a Jesus girl, better in writing. She's a wife to Jared and mother to Owen and Gabriel. Words strung together is her attempt at making sense of the world. In 2016, she is blogging her way through her first full year of observing the Christian/liturgical calendar. She also writes on her family's journey amidst the realities of Gabriel's neuro-genetic disorder, listening to the Spirit in the midst of suffering, and the questions ever present in her mind.

20 thoughts on “a jumble of an update.”

  1. The kids and I pray together every night for Baby Gabriel and his lovely family. We would love to have Mr. Owen over any time to play in our messy play room if you need some down time! (or we can leave the kids with the men and have some mommy time… I had no idea our first kiddos and uteri (uteruses?) have so much in common 😉

    1. Those sweet prayers mean the world to us, Hillary! Thank you so much. We would absolutely love to get together and play…and discuss those pesky uteri ;).

  2. Praying for you, your family and baby Gabriel. Kuddos on the name, by the way! My younger brother is named Gabriel and he is my best friend! Any time I hear that name I think of a man who is compassionate, funny, supportive, a gentle leader and a man after God’s own heart. I’m sure your sweet boy will also have those qualities!

    Much love and prayers, sister.

    Trinity

    1. Thank you so much, Trinity! I love knowing that this will be the second Gabriel my parents have loved, your family has always been so special to them :). Much love!

  3. gabriel. such a good, strong name. praying for strength in the Lord and that He would be your joy.

  4. I’m so glad you shared this, Abby! Because you are right, it’s not nothing. But I always love your dependence on The Lord, and I will be joining the prayers for your baby!!

  5. Hey Abby! Wow what a whirl wind. I’m thankful that we have doctors that can help in this situation but I also can imagine you are feeling really overwhelmed. Keep turning a way from the lies and lean into His truth.

    I know you have family in Houston, but if you ever need a place to stay during a trip to the doctors we have plenty of room to host! I will be praying for you and little Gabriel.

    1. That’s so kind, Lauren! Thank you for your prayers and generosity toward us. We have been so touched by the outpouring of encouragement and support we have received even before Gabriel is here. It lifts us up!

  6. Praying for you and your family Abby! This has been an incredible few weeks and your faithfulness and trust in God is beautifully voiced! Gabriel is one very loved little boy:)

  7. Gabriel is so lucky to have you and and Jared as parents. You will overcome this hurdle with grace and a bit of teeth gritting. Prayers for the entire family as you take this journey.

  8. Abby and Jared, I have a friend who recently has been going through this with her little boy. I will give her a call and ask her if you can call her, if you have questions, etc. I’m certain that she will have tons of helpful information, and she would also know doctors, etc. that could be recommended. I’ll be in touch via FB private message once I’ve gotten permission from her. Praying for you both…

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